Exercising with IgANExercise is a common topic in the IgAN communities I’m part of. People often ask what types of exercise are safe, how...reactionscomments
How IgA Nephropathy Changed Me…For GoodThere is one constant in my life: IgA Nephropathy. No matter what I do or where I go, it is always there...reactionscomments
Living in the In-Between: The Emotional Rollercoaster of a Chronic DiagnosisA routine biopsy turned into a nightmare when an accidentally severed vein led to severe internal bleeding and an emergency transfer for...reactionscomments
Travel with IgANI have always loved traveling—the architecture, cultures, and sights of different countries. That enthusiasm began with family trips during my childhood, and...reactionscomments
IgA Nephropathy and AI: How Are You Using It for Your Health?Something has shifted in the last couple of years. A late-night symptom search now sometimes starts with an AI summary before it...reactionscomments
What I Would Do Differently: Advice For The Newly DiagnosedWhen I first learned I have IgAN, I felt completely overwhelmed. Not only had I received a life-changing diagnosis, but I was...reactionscomments
The One in a Thousand: Surviving a Medical Crisis AloneEditor's note: Read Part One "The Shifting Tide: Navigating the Hidden Anxiety of an IgAN Diagnosis" here Just hours earlier, I had...reactionscomments
Living With A Rare Kidney DiseaseMost rare kidney diseases last a long time. There is no cure, and they often do not go away on their own...reactionscomments
The Shifting Tide: Navigating the Hidden Anxiety of an IgAN DiagnosisBefore 2021, my life followed the familiar, predictable rhythms of daily routines, career ambitions, and plans for the future. Like most people...reactionscomments
Navigating Treatment Decisions with IgA NephropathyIgA nephropathy is a type of kidney disease that causes damage over time. This damage can lead to chronic kidney disease (CKD)...reactionscomments
Choosing Positivity with IgANI was diagnosed with IgAN after months of battling with unexplained symptoms. By the time I finally read the words “IgA nephropathy”...reactionscomments
IgA Nephropathy, The Diagnosis That Told Me I Was SickConcerned with my blood pressure, she sent me out for a full lab panel with a follow-up appointment a week later. I...reactions1comment
The Challenges of Diet and NutritionTo be IgAN healthy, can I only eat lettuce and cucumber? I joke about that sometimes when people ask what I can...reactionscomments
Reading a Comprehensive Metabolic PanelA comprehensive metabolic panel (CMP) is a blood test that doctors use to diagnose or monitor various health problems. It can also...reactionscomments
High Protein Diets and Kidney DiseaseEditor's Note: This article was written by Diane Talbert and originally appeared on our partner site Chronic-Kidney-Disease.net. I have been told my...reactionscomments
Masking IgAN SymptomsUntil recently, I thought of masking mainly in relation to neurodivergent people - hiding parts of themselves or adapting their behavior to...reactionscomments
Creating a Dialysis-Friendly HomeWhether you choose hemodialysis or peritoneal dialysis (PD), doing dialysis at home offers flexibility in managing your end-stage kidney disease. But choosing...reactionscomments
Pacing Yourself, Pushing Yourself: How to Manage Energy Levels With a Rare DiseaseEditor's Note: This article was written by Natalie Abbott and originally appeared on our partner site RareDisease.net. I am beginning this article...reactionscomments
IgA Nephropathy: A Personal JourneyI was diagnosed with IgA nephropathy (IgAN) in 2001, however, my journey began long before that. In hindsight, there were many warning...reactionscomments
I Didn’t See The Symptoms Of Chronic Kidney DiseaseEditor's Note: This article was written by Diane Talbert and originally appeared on our partner site Chronic-Kidney-Disease.net. My son was 40 at...reactionscomments
