Travel with IgAN

I have always loved traveling—the architecture, cultures, and sights of different countries. That enthusiasm began with family trips during my childhood, and my husband and I have tried to create the same experiences for our own children.

Until a few years ago, I never imagined that traveling would require so much caution, planning, and consideration.

Flying then and now with IgA nephropathy

Flying was once one of the easiest and most enjoyable parts of a trip. I could board a plane without wondering how the journey might affect my body.

I relaxed during the flight and arrived ready to explore.

As my kidney function has declined, flying has become more physically demanding. Sitting for long periods can cause noticeable swelling in my feet and legs, while the dry cabin air can contribute to dehydration.

I also experience a deeper level of fatigue than I did before. These effects may continue for hours after landing, so I sometimes arrive needing rest and recovery rather than feeling ready to begin the day. This has been most noticeable in the past year.

Managing IgAN medication on the road

Traveling with medication requires careful preparation. I take 16 to 18 pills each day, so I must pack enough for the entire trip plus at least 10 extra days in case my return is delayed.

As a result, much of my carry-on luggage is devoted to medication. My last trip was to Europe and I literally took all my medications with me, not just 10 days extra. When your medications are keeping you alive, you can’t risk not having them. I often wonder what security staff think when they see it all going through the scanner!

Navigating food choices with IgA nephropathy

Meals are often the most challenging part of traveling. When I stay somewhere with a refrigerator and cooking facilities, I prepare simple meals whenever possible.

When that is not an option, avoiding excess sodium becomes much harder. Because sodium is a major concern for IgA nephropathy, I try to choose lower-sodium foods and drink plenty of water. Even with those precautions, I often notice increased swelling—especially around my abdomen—after eating restaurant or prepared foods.

Thankfully, the swelling usually subsides within a few days of returning home. Finding a balance between what is good for my health and what I want to enjoy remains difficult.

Preparing for the journey with IgAN

The difference between then and now is not only physical; it has also changed how I prepare. I must consider the length of the flight, opportunities to move, access to water and medication, suitable food choices, and the recovery time I may need after arrival. My travel routine now includes:

• Packing enough medication for the trip, with extra doses for unexpected delays
• Keeping medication with me and easy to access
• Hydrating before and during the flight
• Walking around the cabin and elevating my legs whenever possible
• Staying within my dietary restrictions while still enjoying local food
• Resting when my body needs it—even when I worry about missing an activity

Traveling with IgA nephropathy is still possible for me; it is simply different from the way it used to be. With thoughtful planning, greater awareness, and a willingness to listen to my body, I can continue to enjoy the experiences that make travel so meaningful.