Forums

Read conversations, start a discussion, and connect with others about IgA Nephropathy.

Active 6 days ago

Think you might have IgAN but are unsure?

While only a doctor can diagnose IgAN, share the symptoms you're experiencing. This article shares more about what IgAN is: https://iga-nephropathy.net/?p=23...

Active 7 days ago

What questions do you have for our IgAN health leaders (writers)?

Share a note for our IgAN health leaders! They may reply to you here. Or they may write an article based on...

Active 7 days ago

Were you ever told there was no treatment for IgAN?

For years, many in our community heard some version of "there's no cure or treatment" - a moment that can feel devastating...

Active 7 days ago

Welcome! Please Introduce Yourself.

Welcome to our community! We’d love to learn a little about what has brought you here....

How do you respond when someone says you "don't look sick?"

How do you handle it when someone questions your diagnosis because you "don't look sick"? Do you explain, let it go, or...

What's the MOST UNHELPFUL advice you've received about managing IgA Nephropathy?

Whether it was a well-meaning relative, a coworker, or a stranger on the internet, we want to hear it....

Vent here — what part of getting diagnosed for IgAN frustrated you most?

It's okay to vent. Let it off your chest!...

How many spoons does IgAN give you on an average day?

Spoon Theory can be a helpful way to think about energy when you're living with IgAN—every task, big or small, "costs" you...

What are your TOP TIPS for managing IgA Nephropathy?

Share one tip that has helped you better manage IgA Nephropathy. Bonus if you can share how your tip has helped you....

How has IgAN changed the way you exercise?

Share what's worked, what hasn't, and any tips you've picked up along the way for staying active while living with IgAN....

Categories

Select a category to find topics that interest you.