Forums

Read conversations, start a discussion, and connect with others about IgA Nephropathy.

How do you respond when someone says you "don't look sick?"

How do you handle it when someone questions your diagnosis because you "don't look sick"? Do you explain, let it go, or...

What's the MOST UNHELPFUL advice you've received about managing IgA Nephropathy?

Whether it was a well-meaning relative, a coworker, or a stranger on the internet, we want to hear it....

Vent here — what part of getting diagnosed for IgAN frustrated you most?

It's okay to vent. Let it off your chest!...

How many spoons does IgAN give you on an average day?

Spoon Theory can be a helpful way to think about energy when you're living with IgAN—every task, big or small, "costs" you...

What are your TOP TIPS for managing IgA Nephropathy?

Share one tip that has helped you better manage IgA Nephropathy. Bonus if you can share how your tip has helped you....

How has IgAN changed the way you exercise?

Share what's worked, what hasn't, and any tips you've picked up along the way for staying active while living with IgAN....

Why did you choose to bring your own snacks or trust the clinic?

In our poll, we asked whether you choose to bring your own snacks or trust the clinic's vending machine. Why did you...

If you could go back to day one of your IgAN diagnosis, what's the one thing you'd do differently?

Hindsight is 20/20 - share the one thing you'd do differently if you were starting your IgAN journey today....

What are some lingering questions you have?

All questions are safe here. What IgA nephropathy topics would you like to know more about? Please post your question here, and...

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