Judy Akin

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By Editorial Team

1 min read

Judy grew up in Hawaii and now considers Las Vegas her home. She lives with her husband and their 12-year-old son. In 2019, Judy was diagnosed with IgA Nephropathy (IgAN) and is in stage 3b Chronic Kidney Disease. She is an active advocate for rare diseases, a social media content creator, and an ambassador for disease awareness.

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Judy served as an ambassador for IgAN Connect, an online patient resource, and has spoken at various conferences, including Nephcure's Patient Summit and the American Society of Nephrology's Kidney Week. In addition, Judy has been featured in STAT Magazine and Patient Worthy. She enjoys sharing her journey with other patients, the community, and industry members to help build more awareness for diseases such as IgA Nephropathy.

Judy has devoted her time to advocating for rare diseases with the National Organization of Rare Disorders. While living in Hawaii, she provided testimony to encourage the passing of the Interstate Medical Licensing Compact in Hawaii.

Judy's mission is to create awareness and support for the IgA Nephropathy community through her ongoing advocacy and sharing her story.

Click here to read all of Judy's articles on IgA-Nephropathy.net.